Taking Great Strides against cystic fibrosis

May 02, 2013

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The Nebraska Chapter of the Cystic Fibrosis Foundation is launching Great Strides, a national walk event.

Walks will be held in hundreds of cities throughout the year to generate funds to fight cystic fibrosis, a fatal genetic disease.

In Nebraska, walks will be held:

Omaha
Saturday, May 4
Omaha Aksarben Village - Stinson Park, 67th Street and West Center Road
Check-In: 9:30 a.m. Walk: 10:30 a.m. Length: 1.5 miles

Lincoln
Saturday, May 18
Lincoln Holmes Lake, South 70th & Normal Boulevard
Check-In: 9 a.m. Walk: 10 a.m. Length: 2.3 miles

North Platte
Saturday, Aug. 24
North Platte Cody Park
Check-In: 10 a.m. Walk: 11 a.m. Length: 1 mile

Grand Island
Sunday, Sept. 15
Grand Island Eagle Scout Park - North Shelter, between Broadwell Avenue & Hwy. 281
Check-In: 1:30 p.m. Walk: 2 p.m. Length: 2 miles

Kearney
Sunday, Sept. 22
Kearney Yanney Heritage Park - Rotary Shelter, 2020 W. 11th St.
Check-In: 1 p.m. Walk: 1:30 p.m. Length: 1.2 miles

Thanks to medical advances, dramatic progress has been made in the treatment of CF patients. Fifty years ago, most children with CF did not live long enough to attend elementary school. Today, people with CF are living into their 30s, 40s and beyond. Cystic fibrosis affects about 30,000 adults and children in the United States and 70,000 people worldwide. It causes debilitating lung infections that lead to premature death. More than 10 million Americans are symptomless carriers of a defective CF gene.

To register for Great Strides, call the Nebraska Chapter at 402-330-6164 or visit the Great Strides web site.

UNMC and Children's Hospital & Medical Center take care of most CF patients in the region. Last year, UNMC received nearly $200,000 in support from the Cystic Fibrosis Foundation. The Nebraska Chapter raised more than $1.1 million in 2012 to fight cystic fibrosis.

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Tom O'Connor
May 02, 2013 at 11:13 AM

What a powerful message, Sherry. Thanks for sharing Charlene's story with us and sorry for your loss.

Sherry Martin
May 02, 2013 at 8:07 AM

My daughter, Charlene, was diagnosed at birth with Cystic Fibrosis (CF) and she was given 4 - 8 years to live. Thanks to CF research she lived to be 20 years old. I would like to thank everyone in advance for participating in these types of fundraisers because it gives parents the freedom to hope and offers our children the chance for a longer, healthier life. Bless you all!